Sudden Unexplained Death in Childhood (SUDC)
We do not know what happened to Jackson. He passed away in his sleep; we found him in the morning, with a peaceful look on his face.
Because the medical examiner was unable to find a cause of death, that puts us in the "SUDC" camp — a diagnosis of exclusion, for when no other medical explanation is available.
After Jackson passed away, we found ourselves on the SUDC Foundation's website. They are a non-profit dedicated to supporting bereaved families, researching the causes of SUDC, and advocating for funding and public awareness. They've been superbly helpful, with multiple personal phone calls, comprehensive resources, funding available for genetic screening and emotional support, and advocacy for research.